Unicorn Rides Again

So, gonna be really real and really raw right now. Because as a great friend reminded me, I am allowed to throw a little fit. But then I have to be Melanie, and rise up, put on my high heeled boots and charge into the unknown.

We met with the infectious disease doctor this morning. I don't remember his name because I know his role may only be as significant as the length of the appointment today.

Bottom line, he sees absolutely NO evidence that the tissue increase is due to infection because he sees absolutely NO evidence of an infection. The scans don't show any signs. There is no fever, no elevated white count, literally NO indication that there is an infection. 

He said the only way we would know what is going on was through a biopsy. So he talked to us about the two ways the team could choose to do that. He showed us the scans in detail and showed us and explained how they compare to 12/22/23 when there was an active infection. He said he would email the team back that referred us to him. 

We texted Dr. Fournier (Wise One) and asked for him to review the scans. He responded incredibly quick for a surgeon of his level! He reviewed the scans and wholeheartedly emphasized the only way to know what is going on is to do a biopsy. And told us he would be keeping an eye on things for us. 

Interventional Radiology started the process on a biopsy. Grateful that has started. Not sure who is running point right now, so we did shoot a message out to find out. We have no idea of when the biopsy will happen yet. Pray for a quick biopsy with clear results and a good plan! Pray for peace while living in the unknown again. 

Right now we are struggling with having wasted time chasing down an "infection" that infectious disease says isn't there. We are struggling with almost a month of wasted time. We are struggling with fear of what it is. We don't want round 4. So we were feeling good about it being infection. There are still other things besides cancer it could be. BUT our heads are having a hard time not going to that bad case. 

I want a break! I need him to be okay! Because I feel like I am getting close to breaking... but then I realize that MY LORD has this and while I am angry at the unknown and fear. He knows and He is in control. I won't break. I will bend for a bit and then RISE!