Recovery Day 42

6 weeks! It's been 6 weeks since surgery! Unfortunately, he's had a rougher few days. 

Thanksgiving was wonderful. His mom, sister, nephews, brother-in-love and his mom came for dinner and some fun after. Thursday didn't net his normal naps and rest time. But he wouldn't have traded anything to have that time with them. He loved it. 

Friday he was just a bit tired from the previous day. But all in all was good day resting. He tried one of Audrey's amazing pies that evening. That was not the best idea in hindsight. 

Saturday morning he struggled with the GI rebellion. After the girls left for the last playoff game, we did a training session on his colostomy bag for him to start learning how to do it. We went for a good long walk. And some friends came over to talk through some of the questions we have about his colostomy and practical issues of clothing and activity, etc. it was a great time with them with wonderful insight and guidance. 

Sunday he just generally felt off and last night we started to maybe realize why. But right now we are still kinda at a loss and trying to figure things out. Alan started feeling feverish. So we took his temp with our digital forehead thermometer that was used by most county offices during Covid. It registered 101.8 and so we decided to wait a little bit to see if a false reading. 30 min later around 9, it registered 102.8. Well since 101.5 is ER territory with no spleen, we got ready and headed out the door. The girls tackled the last few things that needed to be done to be ready for the week. We ran by Bobbie and Darren's on the way out the neighborhood and borrowed their oral thermometer. It registered 100.6 in the truck. We still decided to go to see what the ER's official thermometer showed or if he tested positive for flu or Covid. After about an hour in the wait room, he tested at 100.1 and was negative for flu and Covid. After another hour, he was down to 99.4, all with no Tylenol or Advil. So we decided to do nothing further and follow up with Dr. F, after much discussion about MDA and his specific circumstances with the ER nurse and doc.

We texted Dr. F during the night to inform him and he agreed to go home in light of the testing but did want his PA (Karen) to follow up today with us. We got home just before 1 am. Karen and I spoke this morning and went over it all and his temp norm or around 99 something. She and I thought that his temp regulation may be an issue because of the chemo still in his abdomen and the massive amount of weight he has lost. She was going to send an email to the whole team (Morris, You, Fournier, Padilla) to see if they wanted a blood check or anything else. She called back in less than 30 mins saying they do wanted blood. 

All day Alan has just felt off. Not bad just off. Ran him to get blood work around 2:15, picked up Audrey and then ran back to get him. Before we could even get home the results were coming in. Several levels were slightly high or low like normal. His red count and hemoglobin are still low like they have been ever since surgery. But his white count is high and a couple other levels were off. Soooo we were confused. 

Audrey and I ran the two cats to the vet appointment. Sadly that appointment was challenging. Humble has a bladder infection, which I was suspecting. Jack Jack has an infected tooth that will have to be removed. So both of them are on antibiotics for the next week!

While at the vet, Alan texted that Dr. F's office had called and he will want a virtual visit tomorrow. So we wait for that to pop up on Alan's MyChart. 

We've watched his temp all day. And up until 6, it stayed in his normal 99s. At 6, he was running 100.2. 7:30 was up to 100.7. And 8:30 was 101.1. At 9 he was able to take Tylenol again. Now it's at 100.6.

Please pray for the wisdom of our medical team. Pray for Alan's temp to stay well. Pray for whatever is going on with his blood to be resolved easily and not require a hospital stay.