Wednesday, July 17, 2024

21 months


"So we will see you in 3 months for your 2 year scans..."


21 months of NO EVIDENCE of DISEASE! Previously his longest time off treatment was 14 months. That he is at this point this truly a miracle of God! 

April 2018 - we were told if he was here in April 2023 it would be in a major minority. 

But he got the treatment needed (not without challenges) and has fought like hell to stay here. But we know too many (including some dear friends) that have gotten treatments and have fought like hell too and yet they are gone. 

We never want to take for granted than he is a miracle. That by science standards he should not be here. Since the first recurrence, we have been walking on eggshells and living from scan to scan. Maybe that all lessens some at the 2 year mark in October. 

So scan results were good news on all 3 fronts! One, as I said above he is NO evidence of disease still! 

Two, the infection pocket is continuing to shrink. In speaking with Dr. Shay today, they decided to stop the regular monthly check ins. They removed him from antibiotics last month after 7 straight months, so now we will just continue to watch the discharge for any changes. 

Three, his pulmonary embolisms are GONE!!!!!!!!! I think at the moment I may be the most relieved about this. Alan's happy because that means he can run again in the neighborhood. He is still on blood thinners and probably will be for another 3 months. Follow up with Hematology is late in August.

I don't think we could be any more overjoyed at where we are today. So now while we praise Him, we continue to pray for the 2 year scans!

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