Tonight was UIL Region band competition for our girls and TWHS Band. I am so grateful to our band framily for their support of the girls, Alan and I! Tonight for competition some other framily joined to love on the girls. Thank you ladies for coming and watching with me.
Always thinking of others, true to his core, Alan insisted that cancer would not take anything else from our girls and that I would still attend every competition. So tonight I left him, watched the best HS Band on the planet and came home to actually sleep.
Dr. Wise One came by and said he isn't surprised at the small struggles Alan has had today. He said he expects tomorrow to be similar if not worse. Coming off of the anesthesia and with the epidural, Alan's blood pressure plagued us for most of the day. He was running low already and then when he would stand to try to walk, it would bottom out and cause lightheaded was making it impossible to stay standing or to walk.
After multiple attempts, they tried tapering back some on the epidural, reducing it by a third. This did in fact help enough that Alan was able to have two small walks this afternoon. He is in no way ready to run a marathon but I am sure in no time, he will be! His attitude has continued to be awesome.
The other side effect of the anesthesia and pain meds (not to mention having gone through such MASSIVE surgery) is that his body is exhausted. Conversations of any length take a toll on him. He struggled today to keep his eyes open during interactions even as short as 5 minutes. This too got a little better with the reduced epidural meds.
So right now we are figuring out that fine line on how to keep his pain reduced and to stay awake to do the things he needs to in order to get better and break out of MDA eventually.
He did do super well with his breathing exercises! He also sat in the chair all day! Super job and stood roughly every two hours to either try to walk or to walk! So he met 3 of the 5 goals for the day! Tomorrow we will be shooting for the same goals.
I will update in the morning if anything overnight to note. Otherwise I may just update at the end of the day.
Thank you all for the texts and calls. Please understand if I don't respond right away, I will eventually. Alan may not be up to communication with the outside world until Friday. We will just have to see! We take things day by day and based on how he feels at the moment.
- Mel
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