Treatment Delays and Plans - Week of April 23rd

So the next week was spent trying to get the insurance company to approve the ipi/nivo treatment plan.

On Thursday, April 19th, we were informed that it was denied in the peer to peer review. So we started actively pursuing multiple other options all at once to try and get approval.

On Tuesday, April 24th, we got word that Alan was going to be seen by the clinical trial team. On Thursday we got official word that we would be meeting with the the doctor the next day. Oh and we went to Audrey's Fourth Grade program.

Friday, April 27th was a long day with a long update. Below is what we put out.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Long Update Warning!

After over 6 hours at MDA, we have a great plan! And we are so beyond grateful to God for going before us and working out all of the details.

Alan has been accepted into a clinical trial (TAPUR) for exactly the meds and protocol that his oncologist was wanting him on. Great news is the sponsor of the plan is covering the total cost of the immunotherapy drugs for as long as it is beneficial. All insurance will need to cover is the cost of scans and labs which they would have to cover anyway! Praise Jesus!

Second blessing of the day! Alan is being screened for a second trial! This trial is for adoptive cellular therapy (ACTolog). If he meets all the criteria, it will take his T-cells and turn them into cancer fighters. They will stay in reserve for when/if the immunotherapy is not helpful.

We walked away from today feeling so incredibly blessed. God blessed us with the opportunity to speak about our faith with two other families walking the cancer journey. We had a great time with those families and laughing with our trial therapy team members.

Please keep Virginia and Christine and their families. Please pray for our team, Dr. Morris and staff, Dr. Tsimberidou (Dr. T) and staff, and Research Coordinators Kshipra and Haley! Pray for all the next steps to fall in place for the first treatment to take place a week from today. Pray for it to work. And continue to pray for us to shine the light of Christ. His glory will be seen in this situation through how we face our circumstances.

We just keep repeating to each how thankful we are to Him for working all these details out. Thank you, thank you, Thank you God!!