BMS Patient Assistance told us yesterday they hope to have an answer on our appeal on Monday. MDA called to reschedule Alan's appointment time with Dr. Dude on the 6th, which is no big deal. That's the latest update I have for you all.
Being out here, mostly isolated with cell service that only works intermittently, no WiFi and having very little distractions from each other has been such a joy. I think the girls would agree. We have had a couple of struggles with tiredness-induced crankiness. But that's because we have played hard. Yesterday we hit a breaking point around 4. So we came back to the cabin, put on the Sound of Music and grilled. Obviously they needed the rest as at 8:15 neither girl is up yet.
God has been so good to us. Alan has felt well during the trip. His fatigue seems to have lessened with the lessening of stress. I can't imagine the load he bears as husband, lawyer, father, son, brother and friend. He always has such an amazing attitude. But I know the stress of trying to get well and cancer free and the many roadblocks we have continued to encounter has not been easy on him.
Please pray for all of us to continue to have a great time connecting deeper than normal. Pray for Alan to continue to de-stress. Pray for each of the girls as the deal with their fears and their emotions. Lastly, pray for me, as I try to take care of them all and still fully process and take care of myself. This last part often falls by the wayside.
Hug your family tighter. Love bigger and laugh more. Love in the moment and make today truly count and something memorable.
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