This afternoon we will meet with Dr. Morris to discuss what's occurred and next steps. At the same time, we are trying to find someone with connections at Bristol Myers Squibb. It does not appear any of the trial group doctors or Dr. Morris have any helpful connections.
Hopefully we know in the next few days if not by the first of the week next week, if they will grant any patient assistance. We are solidifying the amount it would cost to pay out of pocket for ipilimumab. As neither of us are very hopeful about getting patient assistance. We've heard numbers from MDA personnel from 22,600 to 50,000 a dose. We don't know how much of that is their markup or what is true wholesale cost or what is the insurance negotiated rate. So we are working to get a final, true, lowest cost possible dollar amount from MDA.
When you have had the business office of MDA be constantly hopeful about everything and everything they were hopeful for has fallen through, it's kinda like Charlie Brown and Sally with the football.
Plus in truth our hope is never in man, BUT GOD!. The Lord doing a miracle in Alan's body is what I continue to pray for. Our hope is in The Lord showing the way, in Him opening the door or the window!
We have been so incredibly loved by Our Lord and His people during this. For that we will always be grateful.
Everyone keeps asking what they can do. Right now all I can answer is pray. I know people want a way to help that they can feel and see. Unfortunately I just don't have any at the moment. Until we know BMS's decision on patient assistance, we continue to sit and wait. I promise you though your prayers are heard by Our Father, they are felt by us, and they are helping greatly.
Update after the appointment with Morris.
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